Cystic Fibrosis is a serious genetic disease that attacks the lungs and is potentially life threatening. Sadly, approximately one in every 2,500 children are born with the illness.

Though there is currently no cure for the disease, effective treatment can dramatically increase the life expectancy of its victims. Last week the Government announced it would be adding one of the most effective treatments for the disease, Kalydeco, to the Pharmaceutical Benefits Scheme, which could potentially save families up to $300,000 per year!

We spoke to Nettie Burke, CEO of Cystic Fibrosis Australia, to find out more.