Adelaide-based, Renee Staska, is a mother of three whose life took a gut-wrenching turn when all her children were diagnosed with a rare genetic disorder that causes childhood dementia.

Most children diagnosed with the illness are not expected to live past their teenage years, according to a collaborative university study.

The Wire’s Jo Newbury spoke with Renee to explore her advocacy for children across Australia, along with her hopes for the recent funding the Childhood Dementia Research department received from the Little Hero’s Foundation.

Image: Image by Jo Newbury

Produced By: Jo Newbury

Featured In Story: Renee Staska – Adelaide-based mother of three , Professor Kim Hemsley – college of Medicine and Public Health at Flinders University , and

First aired on The Wire, Thursday 31 October 2024